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February 1, 2013 / Ingrid

Leukemia % Increased

Today is our first full day back together as a family…it’s so nice to be whole again. We have agreed that we are sticking together…the next trip will be as a foursome!

Scott took Jesse to U of M for his blood test this morning and the test results were less than desirable. The leukemia blasts are back in his bloodstream. He has had 0% blasts since the last chemo regimen. Today, it is now at 4%. This means the leukemia in his bone marrow and spinal fluid has leaked over into his blood. Jesse has complained of some headaches and has felt more tired lately. We will continue to monitor his symptoms and support his choice to discontinue further chemotherapy because his body has rejected it all.

In the meantime, we will Celebrate Life… his, ours, ours as a family. I thank God for the many, many blessings He has given us since the diagnosis…the time, the bonds with family & friends, the new relationships with the Lord, and the memories.

I have a special request…Would you please lift Jesse’s sister up in prayer? Her heart is so heavy. <333

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17 Comments

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  1. Dee Dee / Feb 1 2013 7:21 pm

    Praying for all of you. We love you.

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  2. Heather / Feb 1 2013 7:26 pm

    Miss My Boy. My Heart Is Always With You Guys

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  3. Helen Morill / Feb 1 2013 7:31 pm

    Daily prayers go up for Jesse, you, Scott and Savannah. You are all in our prayers with special prayers for Savannah’s heavy heart. How difficult it is for her too. You all have given so much to so many. I pray the blessings for you and your family and your time together will continue to flow through God’s grace, His love and His mercy. May Hecontinue to place jsut the right people in your path to support, love andenourage you. It is an honor to be on this journey with you. God bless you all, most especially Jesse as decisions continue and He comes closer to Jesus in all ways.

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  4. Molly / Feb 1 2013 7:51 pm

    Praying now ❤ God bless you all. Jesse, you are so strong and such an inspiration to so many.

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  5. Leilani / Feb 1 2013 8:12 pm

    Lifting your whole family up in prayer. Jesus, bring peace to Savannah, wrap your arms around Jesse’s precious sister. In Jesus name, Amen. You are an amazing family, I admire your strength and faith. May The Lord bless you all. Love and hugs.

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  6. Cindy chambers / Feb 1 2013 8:17 pm

    Sorry to hear this news Ingrid!! Jesse is obviously living the remainder of his life enjoying everything he can. His smiles, laughter and the precious memories ya’ll are making is priceless!!! We think about you all every day and we continue to pray for Jesse. We will say extra prayers for your daughter and you and Scott. Jesus loves and takes care of his little children!!

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  7. Jason / Feb 1 2013 9:58 pm

    love you, jesse and savannah. we pray for both of you most every sunday night when we meet together. know that we are thinking of you often and remembering you in our prayer time when we get together each week.

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  8. jemoto3 / Feb 1 2013 10:10 pm

    Praying for all of you….with a little extra in there for Savannah! God Bless!

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  9. Janet and Todd Goode / Feb 2 2013 12:55 am

    Lifting the whole family in our prayers. I will say an extra one for savannah. God bless you!

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  10. Eileen Donahue / Feb 2 2013 1:59 am

    Jesse prayers for you being said through out my day, your a remarkable young man…stay strong and prayers also for your sister Savannah…may god wrap his arms around you and your family at this time….keep smiling that wonderful smile!

    Like

  11. Macbeth / Feb 2 2013 6:50 am

    In our thoughts and prayers, so glad your a tiresome again. Enjoy The Super Bowl”. Give each other a hug for me. Love you.

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  12. Diane Snellenberger / Feb 2 2013 1:59 pm

    I am so glad Jesse felt good on his trips and so sorry that the news wasn’t 0%. Prayers are still coming everyday for Jesse and all of you. I will say a special prayer for Savannah.

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  13. hwschmidt / Feb 3 2013 12:18 pm

    A Prayer for Savannah
    O Eternal God, We thank you for our sister, your faithful servant Savannah. You filled her with compassion for Jesse’s suffering and you gave her patience and cheerfulness to lift his emotional and physical condition. Lord, give Savannah the strength and faith to heal her heavy laden heart so she can carry the heavy load that is on her shoulders. Father, as Savannah wrestles with the struggles of life, make her keenly aware of your presence and abundant mercy. O God, help Savannah to follow Jesus’ example, finding peace and stillness in her evercaring life. Thank you God, for providing Savannah what she needs to care and love for her brother Jesse and to find everything for serving you, her family, her friends. In Christ, hermann

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  14. hwschmidt / Feb 3 2013 12:40 pm

    Dear Lord, thank you for helping Jesse to be in tune with the Holy Spirit that he never overlooks your gifts of love, your guidance, your healing hands. O God, show Jesse what it means to know you as a loving Father, that he, Ingrid, and Scott may live as you dearly loved children. In today’s devotional time, Jesse and your family were on top of our prayer list. No day passes without y’all’s names in our daily prayers. Christ calls us to stand firm and to live as faithful disciples. Lord Jesus, help us to turn our over to you, mindful of your grace and mercy. In Christhermann your

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  15. hwschmidt / Feb 3 2013 1:04 pm

    Hello Jesse, each day is a gift to you so enjoy it and say yes to life. The clouds vanish when you see yourself as the handsome person you are. Remember when there is a hill to be climbled there will be strength to climb it. Your most valuable possession is your attitude, youy faith, your believe in Jesus, your Savior. With it you win or lose. Fill your mind with thoughts of peace, joy and hope. Make gratitude a part of your day and give thanks for your blessings. In Christ, hermann

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  16. Lynn Konrad / Feb 5 2013 10:16 am

    Ingrid, The strength your family has is tremendous! ! May you be assured your family is always

    lifted in prayers within my family, my friends and our church!. May God bless you.

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  17. Michelle Council / Feb 9 2013 10:09 pm

    As I walk in such simular shoes as Jesse, I understand exactly all the different emotions that you all are feeling each and everyday.I stopped chemo lastyear ,July 28th and wasn’t expected to live long.As you probably remember, I too have ALL with + Philidelpha.I haven’t went back to an oncologist since then, I felt like I was going to put it in the Lords Hands completely, and so I haven’t been tested.I think of your family often.You are so blessed to be able to make all those special trips, I am so happy that Jesse is enjoying all the things that he and I missed at the same time, ESPECIALLY EATING 🙂 I am enjoying that too.I will pray a special prayer for your family tonight because I know that everyday feels almost bitter sweet because we have so much going on in our mind and hearts.I hope to be able to take my kids on a special trip sometime too and then come home and make scrapbooks, you all are making me see that…even if it has to be a camping trip upstairs! Although I have never met any of you, both of us having lived in Roxboro, almost even makes the connection I feel stronger.Just know I’m here praying.Please tell Jesse that I am still here too and never give up hope or lose your faith because God still does miracles no matter what those tests say!I’m also on facebook if you ever need to talk , I’m just a few clicks a way. Love Michelle Council

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