After much preparation, Jesse was released from the hospital, Tuesday, November 27th.
No more continuous IV’s, early morning blood draws, around the clock vital signs, call lights, pumps beeping, hospital food and “Who’s my nurse today?” inquiries. Upon release, Jesse was not feeling well. He was sick throughout the day until late into the evening, possibly he was excited but anxious about the transition.
Jesse’s homecoming may be considered bittersweet… We are so happy to be together again as a foursome! To have watched him rebound from this last blast of chemotherapy, which was like no other and has taken longer than expected, is such a relief. There was a long period of time in the last couple of months that Jesse was so sick and medicated we were not sure what the future held. During this time Jesse began to take ownership of his diagnosis, of decisions being made, of people he chose to reach out to or to let in, of his future…of his life. It can be so overwhelming to us as parents, to family, to friends and onlookers but I can’t even imagine how overwhelming it must be to him…no one can. So, we all must be patient and encouraging to this young man as he makes decisions and choices we may not understand.
Jesse is a fighter, some have called him a warrior. He has not taken off his gloves or put down his rifle…he is making a rationally conscious decision to live his life to the fullest with the prognosis he has. Jesse has already beaten the odds. Yes, he has cancer but it is not the kind that can be simply cut out or given local radiation…it is leukemia. Not the ‘good’ leukemia as one of the doctors called it (as if there was such a thing!) but the bad, complicated kind with the Philadelphia chromosome and 315i mutation…it’s ugly. So, after exhausting all of the normally scheduled chemotherapy protocol regimens, an oral trial chemo and his last trial chemo regimen, plus enduring great neurological damage, he has chosen to reevaluate the situation. He knows how hard this has been on his body and how much more his body would have to endure to even come close to a possibly successful bone marrow transplant. Jesse believes the chemo and radiation necessary to get him to a transplant are to great of a risk for his survival and we honor that decision.
With that, our new motto is…Celebrate Life! This is not the time for sorrow or the end of the story. This is the time to make great memories, live life to the fullest, to look inward, to evaluate life and priorities. What really matters when it’s all said and done? How will you be remembered? It’s not just a question for Jesse, but for us all.
I encourage everyone to… Celebrate Life!
2 Thessalonians 2:16-17
16 Now may our Lord Jesus Christ himself and God our Father, who loved us and by his grace gave us eternal comfort and a wonderful hope, 17 comfort you and strengthen you in every good thing you do and say.