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April 22, 2012 / Ingrid

After 86 Days… Homebound!

It’s confirmed…Jesse will be released this Wednesday, April 25th, after 86 days!

It was Tuesday, January 31, 2011, that Jesse was admitted to Hurley Medical Center to receive his 3rd month of routine inpatient chemo treatment.  Who would have imagined that 86 days later he would be going home?

It has been quite a journey…

Jesse had 3 days of chemo at Hurley, transferred to Hurley ICU for 3 days, Helicoptered to U of M, Ann Arbor to the adult ICU for 3 days, transferred to Mott Children’s Hospital, Oncology floor for 3 hours, then transferred to the Pediatric ICU for 13 days, then transferred back to the Oncology floor for the remaining 63 days.

He has endured chemotherapy toxicity, kidney and bladder failure, fluid in his lungs & ventilator, heart abnormalities & monitoring, blood clot on his brain, tube feedings, catheters, IV’s, blood transfusions, spinal taps, bone marrow draws, loss of speech & muscle movement and neurological damage.

But today, I can so graciously thank the Lord for Jesse’s current health…his kidneys, bladder, lungs, heart and brain blood clot HAVE completely healed. He IS still in remission.  He IS speaking, eating and voluntarily moving his arms and legs.

Wednesday we will bring Jesse home and help him transition to his new home routine.  For the next 6-8 weeks he will attend physical, occupational and speech therapies, also visit his U of M doctors once a week.  During this time his goals are to walk and get as strong as possible, in all ways…and have some fun too!!  Once the doctors feel he has accomplished what is needed, Jesse will be re-admitted to Mott Children’s Hospital for his bone marrow transplant.  Then, the next phase of his Journey will begin.

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10 Comments

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  1. Rhonda Holt / Apr 22 2012 11:38 am

    Praise God! So so thankful Jesse is going home! Will continue to pray for Jesse to get stronger! Love you Jesse!
    Rhonda Holt

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  2. Diane Snellenberger / Apr 22 2012 12:40 pm

    What wonderful news! God and all the support, prayers, etc. from friends and family along with your faith have carried you this far and will continue to carry you. So glad you are in remission and everything is functioning, We know you have to work hard when you are home, but do have fun too. Praying for you each step of the way!

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  3. Donna colee / Apr 22 2012 6:34 pm

    This is the best news.Praise the Lord, I want to sing and rejoice…….Amen

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  4. Angela Cole / Apr 22 2012 8:21 pm

    This is the best news, Jesse you have truly gone through so much and have been a true warrior continue this journey with strength and faith and before you know it God will have you on the other side remembering all that you have been through and helping someone else get through their time in the hospital.. Know that we are still praying for you and love ya,

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  5. Angela / Apr 23 2012 9:54 am

    I am so very thankful for this news! We serve a mighty, powerful, gracious and merciful God! You guys have been in our prayers continuously and we will continue to pray for ya’ll. My husband Jerry and I are the parents of a micro preemie with life threatening illnesses. Hope came into this world 13 years ago this month weighing 490 grams (about a pound) and was at Duke in the neonatal ICU for the first 6 months of her life; I was one day shy of 23 weeks into the pregnancy. Our lives have since been filled with so very many doctors and specialists, so very many hospitalizations and surgeries. She was about a week old when she had her first brain surgery. What a blessing and a joy she is and what a fighter she is ! I say all of that not for sympathy but to let you know that I absolutely understand how you feel as parents and I can truly empathize with you. Life seems to be like a never ending roller coaster ride. Your heart breaks for your child and what they have to endure and you would give anything to trade places with them. Each bit of good news or accomplishment, no matter how small or seemingly insignificant to others, is a blessing and a treasure to hold on to and gives reason for thanksgiving and celebration. Knowing that, for as much as you love your precious child God loves them so very much more, gives peace and strengh when you feel you can’t go on. One day you look back and you realize that there truly were only one set of footprints in the sand. What an exciting blessing going home is! Maybe just a little scary but excitibng and a blessing indeed! I pray that you all continue to draw strength and peace from our Lord and Saviour Jesus Christ, I pray that you feel the abundance of love and prayers that surround you all, I pray that Jesse draws closer to God in all of this. I pray for rest and comfort for you all and I pray that joy fills your hearts.

    In His Love,

    Angela

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  6. Dee Dee Rauscher / Apr 23 2012 12:49 pm

    So thankful! I think home will be a great place for him to get back to feeling like his old self! Continuing to pray!

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  7. Robin Wrenn / Apr 23 2012 5:55 pm

    So excited for him! Goose bumps and such a wonderful feeling in my heart! God is so good! Celebrate and enjoy! What a gift!! Send my love to him!

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  8. lynette carver - your biggest fan / Apr 23 2012 9:08 pm

    Stand strong Jesse, and know beyond the shadow of a doubt that God is always by your side , regardless of how you may feel at any given times. Don’t go on how you feel, go with what you KNOW, God will never leave you or forsake you. love, from your biggest fan.

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  9. Erin Mills Engle / Apr 25 2012 3:30 pm

    Praise the Lord! Keep “looking to Jesus!” Heb. 12:2
    We love you Jesse!

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  10. Rod / Apr 25 2012 11:20 pm

    My man…Your strength to fight doesnt amaze me, after all your Scotts son. In the two years I got to know you guys it was clear that you guys were Go Getters, Chargers and Real Men. We love your family and thank God for your recovery… Rod

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