Skip to content
March 3, 2012 / Ingrid

Rollercoaster Ride

What a week!  After two days of laughter, we had two days of extreme sadness.  Jesse has become so much more aware of his condition and limitations which is causing so much frustration.  He has been attending physical, occupational & speech therapy twice a day.  But before he heads out to his appointments, we help him get dressed up in his workout clothes and put him in his specialized wheelchair.  Jesse has achieved several goals this week.  He can hold his head up while riding in his wheelchair, he can sit up with assistance and he can hit/kick a beach ball.  His strength is coming back but purposeful movements are still quite challenging.

There was a bit of a scare Friday when Jesse was placed in a stand up walker and his blood pressure tanked.  He began to sweat, became pale & was having pre-seizure type symptoms.  They immediately hooked him up to an IV for hydration and ran an EKG.  Everything came back ok, so it was probably too much too soon in the upright position.

The signed baseball bat Jesse received from from his former Roxboro Community School baseball team and signed baseballs from Person High School were all so very special.  I put the balls in his hands and have him squeeze them for one of his exercises.  Jesse tells the nurses he was #45, but we correct him and tell them he still is.  Lots of times, it’s hard for him to think of the past because it reminds him of what he can’t do anymore.  He becomes extremely sad & emotional.  I always tell him that this is just temporary and this too shall pass.

Jesse may not be able to articulate his thoughts or speak like he use to, plus he has physical limitations but he is one resilient, tough guy!  I am believing Jesse will make it through this, one day at a time, issue at a time, and he will be quite the living testimony.

The rehabilitation doctor’s goal is for Jesse to be strong enough to go home by the end of March for a couple of weeks before preparing for the bone marrow transplant.  His leukemic cells are still at 0% but the Philadelphia chromosome has reared it’s ugly head again, so he is taking meds for that now.

A special shout out to Aunt Audrey for taking such wonderful care of Savannah last week!  Bless you all for your continued love, support and prayers.

Advertisements

9 Comments

Leave a Comment
  1. Laurie Bridges / Mar 3 2012 9:03 pm

    Praying & believing I will someday hear Jesse’s testimony! Amen!

    Like

  2. Chrystal Clayton / Mar 3 2012 9:24 pm

    Please give him hugs and kisses from me and tell him I think about him all the time!

    Like

  3. Leilani Schleuning / Mar 3 2012 10:36 pm

    It has been quite a ride! Tell number 45 he will make it through this. We are all praying, and believing that he will be whole again.

    Like

  4. Joshua Wirth / Mar 4 2012 1:08 am

    Praying for you Jesse. I know you can make it through it. One day at a time brother.

    Like

  5. MacBeth / Mar 4 2012 9:40 am

    Knowing your families strength and bond, Jesse will not settle till he reaches his goal of rehabilitation. We are praying and spreading Jesses need for pray.

    Like

  6. Diane Snellenberger / Mar 4 2012 10:14 am

    I believe Jesse will make it too. There are always setbacks before we move on, but God will always be there to give us strength even though we don’t think He is. Bless you Jesse, you will make it. Know that all of us are praying for you and your family.

    Like

  7. Robin Wrenn / Mar 4 2012 6:59 pm

    I know Jesse will make it! He is such a tough and stubborn young man!! And you are right! This too shall pass! I’m so proud of his progress!! Love to him and all of you!

    Like

  8. Wade / Mar 6 2012 7:46 am

    Praying for you all.

    Like

  9. Sage Ahrens-Nichols / Mar 7 2012 8:28 am

    “This too shall pass.” Couldn’t of said it better myself 🙂
    I love you all and think of you constantly.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s